My tumor

appears to be  a Glioma. This type of tumor is made up of glue like cells that hold the brain in place. My tumor appears to be a somewhat fast growing Glioma type of tumor. This is what my sister’s friend’s Neurologist said it looked like to him. The results of the MRI-Spec also seem to confirm that. There is high CLO level whtu-tvrde-mozdanich is cell parts left over from cell replication. There are high lipids, which is indicative of cell death, due to the tumor out growing its blood supply. The MRI-Spec also showed areas of decreased brain function and necrosis(Cell Death). While 80% of Gliomas are metastatic, there are many sub types of Gliomas. The are classified by cell type, by cell grade I (least advanced disease—best prognosis) to IV (most advanced disease—worst prognosis), and location within the brain. A Glioma is not necessarily a death sentence.

The location of my tumor is supratentorial, that is, above the tentorium  that divides the upper brain from the lower brain. It is also  in the left frontal lobe of the  Cerebrum. It is actually very close to my skull. This should make craineotomy/craniotomy easier.

All of that negativity is offset by the fact that, until the tumor is actually removed and a tissue sample is sent to a pathologist, or the Neurosurgeon may diagnose it on the spot,  one cannot be sure of any of the above. There are so many highly technical aspects to imaging, and reading images, that it boggles the mind.So I am keeping an open mind, or at leastgliomy-1 trying to. I often sleep 14-16 hours a day now due mostly to my medication, and to be honest, depression due to not working anymore,the unknown aspects of this, and the waiting, and waiting, and waiting..  I know that a lot of people are praying for me, that and the power of positive thinking have a strong influence also. Your state of mind is critical to fighting cancer. Other than my tumor, I am basically healthy and that goes a long way towards your recovery.If this turns out to in fact be a Glioma tumor, I will likely die from it. The question is how long….about 50% of people diagnosed with this are dead within 3 years. But others, depending on they type of tumor, can live up to 15-16 year. So I am preparing for the worst, but hoping for the best!

Here is a craniotomy, not for the faint of heart……

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An aspirin a day will keep surgery away….

My surgery was scheduled for November 28th.  When the doctor told me this, I just assumed that that was the first available date, after allowing for additional testing. My testing was completed on November 14th. Ms sister felt that this was too long to wait if we didn’t need to. She and I both called the Neurosurgeon’s office to ask for an earlier date. This was on November 15th, I think. They said “okay” and I was told to wait for a call from the Neurosurgeon’ office to confirm a new date. They explained that it may or may not be possible due to insurance reasons and hospital scheduling and such. We were told to wait on the 16th for the call.

Finally about 4:30PM I got the phone call from Summerlin Hospital. My surgery wouls be on November 18th. They went through all of the pre-check in questions….Name, date  of birth, medical conditions, and also a complete list of my medications…..including ASPIRIN. She then gave me a number to call for the hospital check in appointment. I called right away, but they were closed. So I called my wife and told her to start calling the family to get flight and such out to Las Vegas.

The next morning I called the hospital check in number and after going through all the same questions AGAIN, they said I needed to come in by 1 PM that day. That worked out well because I was already going to be in Las Vegas at my Neurosurgeon’s office anyways. The day before, my mom, dad, brother, and sister all booked flights for Vegas and rented a mini-van.

So finally I meet with my Neurosurgeon at his office. He asked me what I knew about my condition….being that I have several family/friends that are nurses, and I had asked for copied of all of my MRI’s, I was able to send some images to my sister who had a nurse friend of her’s to look at the images. Also, I scoured the internet looking for clues as to what I had. The tumor itself was very visible, but being that  there are over 100 types of brain tumors, it was hard to pick out. By looking at my MRI-Spec graphs, I could clearly see that it was a tumor, and not just a tumor but it is cancer:(  So explained, as best I could that I had a tumor that showed” a primary tumor that showed a reverse Hunter’s Angle, low HAA, very high CLO,  very high lipids and necrosis at its core” He looked at me and said”What are you a scientist?” We all chuckled and explained that we already had a neurologist read the report, and I googled the heck out of everything it mentioned in the report. So after we talked a bit more, I began to realize he may not know that surgery was scheduled for tomorrow….so I asked, and he said he knew and we would get to that in a few. So when we began talking about surgery, he asked, again, what medications I was taking…..We rattled them off to him until we said ASPIRIN.He asked me when I last took the aspirin and I replied yesterday. He replied that I needed to be off of it for a week before surgery. He even said that he COULD operate, but if it was his mother or father, he wouldn’t operate for at least a week. By this time, my brother  was already landed in Vegas, my mom and dad were getting ready to leave, and my sister had a later flight!

So now we had to call everyone and tell them it got cancelled! On the bright side, I got to see my brother for a bit, and my parents are just staying until the surgery is over.

All of this over ASPIRIN, which I repeated to EVERYONE I spoke with.In theory, someone should have caught this sooner than they did, but life goes on.

The rest of the tests….

November 7th was another long day in Henderson. This time at Steinberg Diagnostics for a MRI with an with out contrast, and a MRI-Spec. The staff there were great. The whole thing only took about an hour and a half. I did ask for a cd-rom of the images, to see for myself, where this tumor is. It took a while to find it,

Tumor
My Tumor

and not being a Neurologist, Neurosurgeon, let alone a doctor, it took a while for me to locate what I “think” is my tumor. It was a complicated process figuring out how to manipulate the three sets of images contained in the cd-rom. There is a viewer that comes on the disc that allows you to view the images many different ways, all the time seemingly linked together so that as you scroll up or down on one image, it changes 2016-11-07-3that image all the while cutting through a different image in a coordinated fashion. As I moved through the one image on top, which is a frontal view, it automatically moved through the second image, which is a top down view, thus showing a sort of 3-D image of the brain and tumor. This is actually an over simplified description of what was going on but it gives you the basic idea of how it worked. It took quite a while to figure out what I was looking at and looking for. Although in the top image the tumor appears on the left side, on the second image, it appears on the right side of my brain. It took a while to finally figure out that the second image is shown with my 2016-11-07-1feet towards you, and my head away from you. Therefore the right side is actually my left side. At first this caused me to dismiss these images, but I could find nothing else that looked remotely like a tumor. The 3rd image shows the tumor from the side view. All told, there were 572 images taken in 3 different MRI studies that day.Many of the images seem to be irrelevant, at least to me. This last image shows the 2016-11-07image viewer and how it interacts with other linked images from the series.But for the tumor, it was a fascinating tour through my brain. It proves wrong all the people that ever said I didn’t have one:) So far, since being put on Keppra 500mg BID(Twice a day), I have been seizure free. There have been two apparent side affects from this new medication. One being that It is making me very tired, although that seems to be getting less and less. The second one though, and its not listed anywhere that I can find, is that, as many men my age have a harder time urinating, now it flows like Niaggra Falls:)